We made our last medical trip to salt lake in may where saw the neo-natel and nutrition clinic which didn't have much to say other then to continue what we are doing.. Nick had 3 major seizures starting with the one in december.. We met with an amazing seizure doctor at MINSEP in Minneapolis in February who recommended we do an in-patient seizure study at Gillette childrens hospital.. We got back from that about three weeks ago.. The study went really good and instead of having to stay a full week we got the reduced sentence of, go in on monday and leave on wednesday!! The EEG showed constant seizure activity (low but still there).. Which means we control them with medication, but getting sick, to hot, to cold, or a major bump to the head and other things that can up-set the electrical balance in his brain can cause a seizure.. So we just have to be careful and take them as they come.. They think what re-triggered them after going 18 months without one was the pneumonia and Influenza AB he got the end of December 2012..
While we were in Minneapolis he received another round of Botox for his legs and he had his hips x-rayed.. The x-rays showed no change in his leg/hip socket which is really good!! His legs due to the high tone he has in them started to pull out of socket.. The lack of weight baring he does also attributes to this.. But with the Botox and more and more weight he is learning to bare it is helping to prevent them from getting worse.. The bone doc wants to see him in a year with x-rays in 6 months when go back for Botox in the spring! We go back in November for another Botox treatment He continues with his therapies and has completed summer school!! He is getting so big and continues to amaze Jay and I with his strength, spirit and will to fight!! He beats the odds all the time, starting from when he was a amazing little 1 lb 4oz baby boy who wasn't supposed to make it past the first 24 hrs.. Can't believe that was 5 yrs ago!! So the Minneapolis trip wasn't bore of all medical we took Nick to the zoo which I'm not sure who had more fun me or nick.. I mean that is a photographers heaven with lots to take pictures of.. (My battery died thats how many pics I took) Nicks favorite part was splashing in a fountain and the petting zoo!
Jay continues to work hard to provide for us.. He is still pulling lots of long hours and busy weeks but he seems to be home more which is really nice for us as a family.. He hasn't had much luck with losing weight but i don't think his heart or mind is set for it just yet.. that will happen when he is ready.. He had a good checkup with his doctor who yelled at him about his weight but otherwise he is healthy.. which is good :) He is am amazing father and husband and we can't ask for more than that!!
I am blessed to be a busy stay at home mom and wife and I love it.. I spend my time in the gym doing a MMA boot camp and just started a women's MMA class to learn more about the sport.. It is so much fun to learn but I could never do it a actual fighting level.. No cage fights for me lol.. I add that onto my Pink Gloves Boxing to keep me busy and sane. I am learning so much for self defense and physical fitness which seems to be my passion lately.. I am going to try in the next year to get my personal trainers license so i can start to share my passion and learn more for myself.. I still love taking pictures and am active with the Oilfield Wives Williston group.. Which I raised $1200 for our relay for life team.. I don't have the team total yet so I'm not sure how much that is.. I love getting out and being active in the community!! Well I believe that is all for now and hope to update you all soon!!
